A HUGE thank you to Nicole McCullough, Lexi's amazing mom, for sharing this story with us!! Today, we honour babies like Lexi and mamas like Nicole - along with the hospital staff that take life saving measures to ensure these little lives have a chance!
After a devastating loss we were ecstatic to find out we were expecting again. I was admitted to the hospital at 24 weeks for dangerously high blood pressure. While admitted we also found out our little rainbow baby also had IUGR (Intrauterine growth restriction). I was told I would be in the hospital for the next 3.5 months until she was born. After only 5 days in the hospital my condition worsened and I developed HELLP Syndrome. I was told to contact my family because they would be taking me in for an emergency C-Section as it was the only option to save both of our lives. My daughter was born in November of 2012 rather than March of 2013.
Lexi came into this world weighing a mere 500 grams, had no respiratory effort and required ventilation. The Doctor told my family that we were very lucky as they don’t often attempt to help babies weighing less than 500 grams. During her first few weeks of life and her 109 day NICU stay, Lexi battled pneumonia, suspected sepsis, Bilateral grade1 IVH , RDS with PIE, BPD, Persistent PDA, mild pulmonary hypertension, stage 2 ROP, anemia and apnea to name a few. Our little miracle could only breast feed in the NICU up until 2 days before discharge when she was finally able to master the bottle (Haberman).
Finally, 10 days after her actual due date, we got to bring Lexi home! It was an exciting yet scary day. As much as we were excited to have Lexi home with us it almost felt like we were leaving part of our family behind. Her primary nurse, we referred to as her "NICU" mommy, was exactly that. They treated Lexi like their own. The nurses , neonatologists, social workers and NICU Respiratory Therapists are amazing at what they do and we are forever grateful for the exceptional care they provided for not only my daughter but for us as well. We have returned to the NICU every year around Lexi's birthday with donations for the babies and families as well as a birthday cake from Lexi to the NICU staff.
We are so thankful to have been able to keep some of our favourite ladies in Lexi's life! Lexi had many follow-up appointments after leaving the NICU and she continued to amaze her Doctors and Specialists. Our little preemie decided she could do things according to her actual age rather than her adjusted age and just after her 1st birthday she took her first steps and hasn’t stopped running since.
Lexi looks up to her older brother and he loves her to pieces. I’ll never forget the first time he saw her, he said “she’s so cute” and whispered “grow bigger baby Lexi.”
Although I still struggle with PTSD from our rollercoaster of a journey, I have my amazing little miracle & support of my family to get me through my days. Knowing we can provide hope and inspiration to other families of tiny little miracles helps me get through tougher days. Sometimes things don't go as planned but you learn and grow from your journeys